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National organizations with resources for people with Parkinson’s Davis Phinney Foundation – quality of life, especially exercise and diet related  Michael J Fox Foundation – research and clinical studies  Parkinson’s Foundation – quality of life, recently added to their research agenda The Breather is the first drug-free device for those who suffer from shortness of...

Parkinson’s – Discussion Group and Education Series January 4, 2023 Open Discussion One of the participants was having some difficulty swallowing. He developed pneumonia and was admitted to the hospital. He is working with a speech therapist and will share some of the exercises he has been doing. Patrick will review them and share the...

Parkinson’s – Discussion Group and Education Series December 14, 2022 Open Discussion Movies in which someone handles going through a major life change started the discussion. As participants began to share their experiences, it became obvious that many did not remember the title or the names of the actors, and in a few cases, even...

Parkinson’s – Discussion Group and Education Series November 30, 2022 Open Discussion This week the group discussion centered around some of the major decisions that PWP ultimately have to make as their symptoms progress. Moving, living arrangements, type of housing, and character of the neighborhood, were all mentioned as things to consider when faced with...

Parkinson’s – Discussion Group and Education Series November 30, 2022 Open Discussion This week the group discussion centered around some of the major decisions that PWP ultimately have to make as their symptoms progress. Moving, living arrangements, type of housing, and character of the neighborhood, were all mentioned as things to consider when faced with...

Parkinson’s – Discussion Group and Education Series November 2, 2022 Open Discussion    Floor Exercises Several group participants have responded positively to adding a floor exercise class. However, there are concerns that some people won’t be able to get back up off the floor. The Bear Crawl was mentioned as a technique that addresses this...

Parkinson’s – Discussion Group and Education Series Wednesday, October 12, 2022, at 1:00 pm (PT) Natalle Neri presented “The Voice & Swallowing: Exercises to Stay Loud, Healthy, and Strong” Ms. Neri, MS CCC-SLP, a Speech Language Pathologist, provided a great deal of information for PWP regarding difficulties with speaking, chewing, swallowing, and choking. She had...

Parkinson’s – Discussion Group and Education Series September 28, 2022 Open Discussion This week’s group discussion covered a variety of topics. Many of the attendees actively participated, sharing their experiences and bits of advice with the group. The essence of the discussion follows. Falling PWP are frequently unsteady and prone to falling, which can result...

Parkinson’s – Discussion Group and Education Series August 24, 2022 Open Discussion The conversation started with a question about Duopa, and then DBS. Most of the session was spent talking about various aspects of DBS. Duopa Information – from sources listed below What is a Duopa pump? The “duopa pump,” FDA-approved in 2015 for advanced...

Parkinson’s – Discussion Group and Education Series July 27, 2022 Open Discussion Dr. Ray Dorsey The session opened with a review of Dr. Dorsey’s presentation regarding ways to prevent Parkinson’s Disease. The group thought the presentation was excellent and extremely informative. One person remarked “now I know how I got PD” because he was regularly...

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