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Notes, resources, links and a summary of what was discussed.


Presentation: “The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease” Presenter: Carol Clupny Content: A fireside chat with author Carol Clupny. Carol discusses her life with Parkinson’s disease and her novel: “The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease” Contact Information: Bio:

  Presentation: “Speech, Voice, Swallowing, and Cognitive Changes, in Parkinson’s” Presenter: Lindsey Unger, Owner/Speech-Language Pathologist Content: An informative discussion covering the speech, language, voice, swallowing and cognitive changes in PD, and effective intervention techniques that make a difference. Contact Information: Converse With Confidence, Inc. 818-903-0756 (office) Email: Lindsey@conversewithconfidence.com Website: www.conversewithconfidence.com

Parkinson’s – Discussion Group and Education Series  March 15, 2023 Open Discussion   DRY MOUTH: Dry mouth refers to a condition where your salivary glands don’t produce enough saliva to keep your mouth wet. Managing Dry Mouth Biotene Products: Oral rinse     Oral gel     Mouth Spray     Lozenges. ACT oral rinse for dry mouth. Mentos Sugar Free Gum...

Parkinson’s – Discussion Group and Education Series  March 8, 2023 Open Discussion (PWP=Person with Parkinsons’) PWP A. talked about an incident with her DBS equipment. She had been doing very well on it, but suddenly she had both the tremor back and dyskinesias. The support person had her adjust (lower) her DBS level. So far,...

Parkinson’s – Discussion Group and Education Series  February 15, 2023 Open Discussion Patrick opened the session with an update on a member of our group who is having some medical issues. Partick promised to share any news he receives. The person who has been trying the spinal cord stimulator still has pain in his leg....

Parkinson’s – Discussion Group and Education Series February 8, 2023 Presentation: Being Well with Chronic Illness  A Guide to Joy and Resilience Click above image to view presentation. Kat Hill and Nancy Peate More than 40% of the US population are affected by chronic diseases. Being Well with Chronic Illness is a guidebook for every single one...

Parkinson’s – Discussion Group and Education Series  February 1, 2023 Open Discussion What is the best exercise for PD? The type you will do! Exercise Equipment   Comparison of Recumbent Bike to Recumbent Elliptical This is not a comparison of a Recumbent Bike vs. a Standing Elliptical Schwinn Recumbent Bikes Amazon Recumbent Bikes   Octane...

Parkinson’s – Discussion Group and Education Series  January 25, 2023 Open discussion Patrick asked for feedback on the presentation by the physical therapist who shared her expertise with the group. The majority of the group thought it was well done and asked for her slides. Patrick will put them on SMARTXPD.com Parkinson Wellness Recovery PWR!...

Parkinson’s – Discussion Group and Education Series January 18, 2023 Presentation: “Why Parkinson’s can make basic movements challenging and practical techniques that help” Presenter: Jessie Agrimis PT, DPT NCS, APT. Content: Jessie reviewed the pathways involved in Parkinson’s Disease to help explain why automatic movements can become more challenging. She presented some techniques for the treatment...

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