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Notes, resources, links and a summary of what was discussed.


The Parkinson’s – Life discussion group welcomed Patrick back “live” since having knee replacement surgery April 19th. He looks like he is progressing nicely, but group members cautioned him to take it slowly and “ice it” whenever he can. Patrick announced that minutes from this discussion group have been moved to the SmartXPD website rather...

As our Parkinson’s-Life Discussion group continues we’ll be compiling a comprehensive list of vetted resources that can help you optimize your quality of life. This will be your go-to page to quickly hunt down links. Master List of Links/Resources YouTube Resources SmartXPD YouTube Channel PCLA YouTube Channel MindValley on YouTube. Guided meditations Bob and Brad Physical...

This discussion group was a SmartXPD® educational event featuring registered dietitian, Marty Acevedo, MS, RDN. Her presentation was recorded and can be viewed by clicking the image below. You may also download Marty’s PowerPoint presentation in PDF format by clicking the blue button below. Highlights from the presentation include(but not limited to): • Diet targeting...

The session started with a question about ways to help turning over in bed. This led to a more general discussion about stiffness and similar difficulties, with people sharing their experiences. One member of the group asked about picking out a good mattress for someone with Parkinson’s. The most common suggestion was to find a...

Yoga is one of the most beneficial complementary therapies for PD. Some of the benefits of an ongoing yoga program may include reduced rigidity, improved strength, better balance and coordination. A yoga program can be very relaxing, helping with sleep issues and concentration. Yoga may mitigate some symptoms and even slow the progression of PD....

Abbyann recommends the life inspiring book “Gone” by Linda Olson. We are reaching out to her to see if she’d be willing to speak to our group. Ann Harwell shared a slideshow of her beautiful quilts. The titles had been added and Ann narrated, adding considerably to the presentation. It is amazing that she has been...

Kizik Shoes were discussed as a very comfortable, affordable and easy to put on option for athletic and casual shoes. Click Here for Kizik Shoe website Barry, who shared that he is a writer and also a college professor, discussed his approach to his diagnosis. For himself, he has found comfort and support in being open and...

Balance issues, vestibular therapy – Bob and Brad Physical Therapists on YouTube I found their Vertigo & Dizziness, Home Treatments video here as well. They have a product that Judy & Walter like very much called the Booyah Stick You can see a video on Booyah stick by clicking here and all Bob and Brad...

Meditation Chi Gong a type of Tai Chi that PWP use to help manage the symptoms MindValley on YouTube. Resource for guided meditations Building a gazebo (both metaphoric and actual) One of our participants discussed depression and reconciling with change and loss. Losing the ability to do activities that brought joy. Anger, walking, accepting. Balance Small...

Today we discussed the importance of humor and nurturing humor and laughter Searching for a social worker to join us to discuss issues relevant to Parkinson’s The pitfalls and values of an interconnected society based on the internet. The predatory industry peddling promises for a cure. Also, internet found websites that seem very convincing but...

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